Some appointments set...

Just heard from a nurse named Marsha at the craniofacial department at Children's Hospital.

Monday, September 8th we have a full morning of appointments for Zoe

9:30AM meet with Dr. Michael Cunningham, a doctor we've already been working with--a real mensch

10:30AM Meet with the neurosurgeon Dr. Anthony Avellino.

11:20AM Meet with the craniofacial/plastic surgeon Dr. Richard Hopper

12noon Meet with a social worker, unknown who at this point, to get information about support services for us.

I asked why we couldn't get in sooner; apparently the surgeon meetings only happen on Mondays. As next Monday is a holiday, it won't be until the following Monday. Marsha assured me that the delayed meeting time doesn't delay action--things are already being put into place, the doctors are already conferencing about the best possible approach for Zoe.

To be clear, this day of meetings is to deal with the immediate issue of needing to relieve the pressure on Zoe's brain and in her skull. We have yet to hear from Fred Hutch. Once they are on board more will be know about timing, course of action, etc.

And, again, Osteopetrosis is still a likelihood, but not an absolute certain diagnosis. Blood tests are pending.

Thanks so much for all your outpouring of love and support. We are truly blessed by our community. Food arrived on our doorstep early this morning (thanks Martin and Family!), and the calls and emails are bringing smiles through the tears.

So many questions of "How can we help?" leads me to realize that we had better come up with some clear answers to that question!

K