Monday was just mostly a whole lot of waiting around. We were schedule for 1.5 hours worth of meetings starting at 2pm, but we basically waited for 2 hours before our scheduled doctors could meet with us.
Cunningham was willing to meet with us, unscheduled, to answer a few of our burning questions regarding bone and marrow samples being sent to the right places. It was just a crazy day for him and everyone else at the clinic that day, but he was so good at being focused and present and not relaying the sense of needing to be so many other places while he was with us.
The social worker met with us to talk about how we were doing with the idea of the surgery, to give us basic info like where we would be waiting on Thursday, where the designated room for "pumping" is (they think of everything), where the computers are (I will be able to do blog updates as Thursday unfolds), etc. Tomorrow she will actually give us the guided tour.
We met with the plastic surgeon, who gave us the run-down for the surgery procedure (a lot of bone cutting and reshaping)--again, they have allotted 8 hours for it.
A couple of nurses met with us to get some details about Zoe. One of them showed us photos of other babies who had had surgery at Children's for craniosynostosis. The before and after pics are pretty astounding. The post-op photos are a little rough.
I will be taking pics of Zoe before and after --and during recovery. I know not everyone is up for seeing a post-op baby--so I'm going to figure out how to load the photos up on another website so that those who wish to see them can do so.
It was a bit of a grind being there for so long. Our friend Amy came to take notes again and remember the questions we forgot to ask.
Here's how we looked:
Feels like we're at the start of a verrrrrry loooonnnnnng marathon.
And, we haven't even trained.
Tomorrow, more meetings, more details about Thursday, and another blood draw. Poor girl, I'm surprised she has any blood left!
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