Another, longer walk today with the girl. Fortunately her parents didn't wig out with neuroses as expected.
Little complications have been arising, such as more frequent emesis and traces of blood in her stool. So far it's watch and wait. Is it just the GI tract getting used to more things moving through it? Or, is it signs of gut GVHD starting to show?
Not worried yet, just wary.
I'm detaching myself from the expectation of Zoe really being discharged on Monday. As tonight's nurse told us, "Don't pack until they tell you that you're free to go." I guess she would know. The team is hyper vigilant with babies and doesn't want to discharge us only to have us immediately return due to complications.
I'm so fine with that!
Tonight we had a mini birthday party in the room for Jeff's birthday. Six adults and Zoe. Fortunately our nurse had no problem with people being in our room past visiting hours.
Bribing with cake never hurts.
3 comments:
Happy Birthday Jeff! Hope you get to take your sweet girl home soon!
Mariah
Happy birthday Jeff! Life is so boundary-less - eternally filled with everything amazing and everything scary. Only the passing of years or staring death in the face make us see profoundly how beautiful it all can be. It's funny how you just want Zoe to be so free, but taking her out into freedom can make you want to snatch her back to the womb of boundaries where things appear to be safer.
Monica
Happy birthday, Jeff! Your Texas cousins hope you did something fun, like shoot off one of yer guns or eat some tasty brisket. Yeeee haaawwww!!
xoxo - J and B
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