Wow, a week since the last post. I definitely have much less time to write these days.
We are gradually getting into a groove with all of Zoe's medical needs, but it is a constant and demanding schedule.
Twice in the last week we've awoken early to find Zoe in the middle of a chilly lake of formula due to the feeding tube disconnecting from her feed pump. The first time we were all really pissed off about it, the second time it was more of an annoyance (and Zoe, the one swimming in the mess, was remarkably sanguine about it all).
She is simply remarkable in all of this--so seemingly unscathed emotionally by her experience. She's just sweet and happy most of the time (except when she's not).
In contrast, her parents aren't quite there yet themselves.
We take Zoe to twice weekly clinic appointments at SCCA on Tuesdays and Thursdays for blood draws and check ups. Last Friday's appointment came after a terrible night's sleep, and I was in a foul, foul place about all of the work that stretched unceasingly ahead.
I admit, I may have been rude.
(Madame PA: This is what I know for certain-- when I am crabby about all this, telling me that 'at least I have it easier than a single parent in my position' is not going to make me snap out of my self pity. It will only make me bite your head off. The only proper response is to cluck and say, 'I'm sorry you're having a hard time; you will get through this.')
But, being back at home and having some normalcy again is definitely great--and the work load gets easier with familiarity. I figure that probably the amount of work we have with her is not more than a parent with two children, and people obviously survive that just fine.
Working (massaging) on a fuller schedule now that we're back at home has been good too--it's great to focus on other people's issues other than our own. And massage is such a reciprocal career in that it's usually a mutually healing experience.
On that note, if you're in the area and need a massage, feel free to contact us. Between Jeff and I, we are providers for the major insurance carriers of Aetna, Regence (Blue Shield), Premera, Uniform Medical, L&I, and soon United Healthcare. We have years of experience in both the relaxation and medical massage arenas.
In letting us support your physical health, it's another great way that you can support us.
1 comment:
You are entitled to some bad days, kiddo. I totally remember wanting to strangle a few social workers/RNs/technicians/doctors in my day, or at least given them lengthy lectures on the definition of "patronizing." :) I recall having zero patience just when everything was going boringly smoothly for the atypical, emergency-driven lifestyle that we had...as though it was my way of discharging some stress I wasn't able to acknowledge DURING "those times." All those ways you know how to care for yourself, including massage for others and Monday Wine Nights (or tues wed thurs etc for that matter) ..keep doin' 'em. ;)
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