Day +121

Four months and a day past transplant. I just re-watched the video we made on transplant day--and it took me right back to that gaping sensation of the Enormous Unknown.

Makes me want to cry just seeing and feeling that again.

She done good. We all done good. Every single one of us --that means you!

The Zoe-meister keeps thriving and is slowly gaining the ground other kids her age have mastered by now. She sits up well and is close to being able to roll over. She is being very resistant to eating food by mouth though. She went through a period where she was willing to try anything offered to her; now she complains when anything is put in her mouth.

Many things are two steps forward and one step back with her. I keep myself focused on the long term and know, absolutely, that one day she will eat normally, as well as walk and talk and do all the things any other kid does (with her own adaptations, of course). I look at other kids her age and younger quizzically, because they are simply different species to me.

In my world Zoe is the norm.

She is starting to teeth again, after almost a year since her last two came in. The advancement of her osteopetrosis and the resulting overgrowth of bone had locked her teeth into her jaws, not allowing them to progress in the normal fashion. Her new osteoclasts have obviously been diligently at work and have remodeled her bone enough to allow teeth to begin peeking through. Three new beauties are flashing pearly through her pink gums--along with the accompanying crankiness. Poor girl will probably be teething triple time now!

Also, her hair is finally starting to grow back. We call her our little Chia Baby.





A couple new vids added to the YouTube link. It's all about getting the girl to laugh...