We had our dear friends Susanne and Amy with us to take notes and ask the questions we would forget--or not think of. They were the perfect people to have with us: Susanne has a doctorate in Physical Therapy, and Amy is a newly minted Naturopathic Physician.
And boy, did they perform their duties well! Their knowledge of anatomy and medicine kept them on top of the information gathering, while Jeff and I were free to digest the information on an emotional level.
Team Zoe, we called ourselves. So great to experience this day as a team.
Salient points that came out:
- Today dealt specifically with her needed cranial surgery.
- They want her to have surgery as soon as possible, so, as they are booked through the end of October, they will have to bump other surgery patients or cancel a clinic day.
- Her surgery will likely be 8 hours long as they will be also working on widening her optical foramen where the optic nerves go through.
- We are still awaiting the results of the blood test that confirms an osteopetrosis diagnosis.
- We will be still going to Seattle Cancer Care Alliance on Wednesday for the scheduled appointment, regardless of whether the blood test results come back in time.
More details about today will be posted when we get the notes back from Susanne and Amy. Again,so glad to have them there -- because I honestly can't remember much about today. Tilt!
4 comments:
Glad to hear you had the "Grace Squad" with you. I was a part of a large prayer group yesterday with Susan and Tom and asked for prayers for Zoe Elan, Jeff and Kelly. Chanting Wednesday mornings at Stillpoint. love to you all-gary
Team Zoe, I love your energy. All is not lost, but possibility. Of healing, of friendship, of learning, of living. Love it and love you all.
Team Connor
How awesome (and I mean that literally) to have such talented people as the women of Team Zoe with you now. The Potpies send light and love to you every day.
So glad you have so many wonderful people to help in all sorts of different ways. Always good to have others help take note of the many details that no two people under so much stress can contain when meeting with the docs. We have had you very much in our thoughts and prayers (I just wish we were handy with tools to help out with all those other niggly little irritations going on with your house and truck!)
Know that you are very much loved...
Monica & Tony
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