We did officially arrive home on Wednesday. They originally wanted us to stay until 8pm so that they could give us the training session in injecting the blood thinner then. As we weren't interested in sitting around for the entire day just to get a lesson that night, they allowed us to go home on a "pass" and return that night for the lesson and then official discharge.
Our bed felt amazing that night. Zoe must have thought so too as she was determined not to sleep in hers. She's on a jag where she's mostly awake between 1 and about 5 AM. Well, can't say that this pattern is new. We seem to revisit it often. I think her natural rhythms would have her sleep all day and up all night if we allowed it.
Yesterday's blood draw saw her WBC's go up a little bit, but the word is that they are not jumping on it. Since she's mostly holding steady, her other numbers are good, and she still shows no visible or detectable signs of infection, they have to assume she's doing okay. It still stresses us out to have this be a point of mystery with her. It's not out of the question that she could have an infection somewhere in her.
Meanwhile, we took her to her naturopathic pediatrician today to get her set up with some supportive and immune balancing supplements. Grapefruit seed extract is going to be a challenge though. It's only a drop for a dose, but it is foul tasting. She complained for about an hour after we gave that nasty stuff to her.
We are still trying to catch up on sleep and sanity. Jeff volunteered to be the one to inject Zoe, and he hates doing it to her (can't blame him). Zoe is doing better every day. She "talks" a lot--even when being fed. When she wakes up, the way we know she's up is that she starts to babble. Always puts a big grin on our faces. The girl has got quite a spark.
4 comments:
There's no place like home! I'm glad you're there. I hope the WBC mystery is resolved soon, but it's good that the doctors don't think it's significant. Thinking of you this weekend.
Ahhhhh....silence never sounded sweeter. I still remember my first day home after our last long stay. I really like how flexible your team is about everything. Enjoy your weekend with your beautiful baby. :)
A taste of normalcy! So glad you're all home.
Thanks for posting all of the pictures. I didn't think they were too graphic. You just can't make a beauty like that look bad! Have you tried mixing the grapefruit seed oil with yogurt? I get my kids to take their lemony fish oil with yogurt, or sometimes ice cream.
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