We Wait

I can see a beautiful blue sky above autumnal colors from the hospital window where we wait, still, for answers about what's going on with our girl.

Her WBC levels were even higher today.

The CT scans she had this morning, one with contrast and one without, showed that her brain and surgery sites are doing fine. No problems have arisen from the use of blood thinners.

But, what is up with the elevated WBC's??

One of the cranio-facial team docs had read that osteomyelitis does happen more frequently in osteopetrotic children. The Infectious Diseases department will be swinging by to talk to us to see if they can figure out the cause of her high WBC count. If they can't, and she still doesn't seem to be coming down with a cold, they will scan for signs of osetomyelitis. Treatment for such a diagnosis would involve weeks of antibiotics.

Let's hope it's just a cold--or--her body's reaction to her nasty diaper rash that she has had raging for the last several days.

On the flip side of this new worrisome development, Zoe continues to do great. She's actually cried and screamed a lot today--and that is really a good sign that she's snapping out of her stupor. She's kicking more and using her arms and hands more.

Another night in the hospital, maybe more.