Day -6

Hip, hip, hooray--we are in a larger room! We just got moved a couple hours ago, and man-oh-man, does it make a huge difference. The other room was so small there was no place for a soap dispenser--really.

This room has about three times the floor space--and there is a proper bed for us to sleep on (instead of a saggy, lumpy sleeper chair). Counter space! Closets! Shelves! Bigger window!

Do I sound pleased? Anything that promotes parental sanity is a big bonus.

Zoe's time with the Busulfan is almost over. She's been a total champ. According to the doc, and also a nurse we talked to today, a lot of kids are totally off of food by mouth by this point--even before this. Zoe is still truckin' with her goat's milk, and is even still letting us stuff some solid foods into her (but with greater reluctance).

Tomorrow they start the Cytoxan. The doc said that they will be pumping her with fluids along with the Cytoxan, as this particular chemo drug will damage the bladder if it hangs out there for too long. So, they aim to flush her out often.

The challenge with babies, we learn, is how to keep them balanced on the fluids in and out. They can tend to hold onto fluids--as Zoe is doing slightly now--so they give them diuretics to flush them out. Over-much of the diuretics, and the kidneys work too hard. It's a fine-tuned balance they try to maintain.

Oomph, tired. This sitting around and being a neurotic parent of a transplant patient is exhausting. Night-night.