Fortunately, nothing interesting to report: more of the same. Zoe continues to tolerate the Busulfan pretty well, and Jeff and I are learning how to settle into this experience.
Today we took turns getting out for a walk to U Village--only a 15 minute brisk walk via the Burke Gilman Trail. On his walk Jeff discovered that, as parents of a child being treated long-term at Seattle Children's, we get to work-out at a local gym for free. Nice!
Zoe is currently animated and chatty--and this after having the one-two punch of the Busulfan every six hours, and a recent dose of an immunoglobulin that required preemptive doses of Benadryl and Tylenol to keep her from reacting from it too much.
I am having to get over my Seattle sensibilities that dictate I recycle every last possible piece of trash. Here at the hospital they throw away things that make me cringe. Every time they bring us goat milk it is brought in a plastic baby bottle that then goes straight to the trash when finished with. Plastic bins, pitchers, cups, utensils--all thrown away. Someone needs to take the recycling revolution to the hospitals. They do have a recycling bin here and there in the halls--but mainly for paper and glass bottles. Not really a stout enough campaign to put a dent in the waste that this place produces.
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Oh, forgot to mention that we have to wear gloves while changing Zoe's diapers now. Her waste is toxic and hazardous to anyone who touches it.
Bath time
360 degree view of our room.
2 comments:
Wow! She really knows her eyelashes! I loved seeing that video! The birthday and twilight ones were great, too, but the eyelashes one lets her show her stuff- she is growing and learning in spite of the huge medical challenges - Go Zoe! We at Wonderland are thinking of you a lot! Jane
Little less excited about bath time than other things, eh? :) Thinking of you, Jeff and the Zoester every day.
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