WBC counts are down today--still high, but the fact that they're starting to trend down is a relief.
Still no signs of infection anywhere. The Infectious Diseases department, upon hearing what has been going on with her, said that they felt everything being done was adequate and that they had nothing to add.
We discovered today that her lumbar drain puncture site was weeping cerebral spinal fluid (CSF), which may account for why we had such a horrible night last night. Zoe was in a lot of pain, crying a high pitched cry which only stopped when she nursed. When she nursed she would bite me a lot--which is not like her. They finally gave her some stronger stuff than tylenol (oxycodone) and she (and we) finally slept at about 5am.
Turns out, the leaking CSF may have been giving her a wicked headache. The pressure change from a leak in a pressure regulated system could have very conceivably caused the pain. They put a stitch in the puncture site this morning, as well as some super glue (!). Should take care of it.
Poor little Z is starting to look like a baby pin cushion.
We are groggy today, but not so worried. I'm feeling good about how she's doing.
1 comment:
Oh Sweetie Zoe. Such a nightmare. I hope this leak is mended for good. I know Super Glue was originally invented for medical purposes. I knew someone who used to put his cracked teeth together with it! Take care of yourself, mama, since she gains strength from nursing with you.
Monica
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