Well, I keep hoping that I can write and tell you all that we're home, but, we're still at Seattle Children's.
Zoe's WBC count was back up again this morning. Infectious Diseases will be coming to talk to us today to see what, if anything, they can come up with. I called her naturopathic pediatrician today to read the lab reports to her. She said that the numbers make her look like she's got some sort of bacteriological infection going on. I'm sure this is not news to the team here, but I wanted to see if the naturopathic perspective would yield something that the allopathic had overlooked.
Nope. Still a mystery why Zoe is spiking the WBC's.
Also, the swelling on the right side of Zoe's head has grown since they patched up her leak at the base of her spine. The cerebral spinal fluid is obviously under pressure and is wanting to shoot out somewhere, so now it's collecting under her scalp where there must be a hole in the dura. As disturbing as this sounds, it's something that they were expecting could happen. Jeff had the conversation with the Neurosurgery ARNP about this while I was at breakfast. As far as he could understand, if she didn't have the issue of the elevated WBC's, we would be home by now, despite the swelling in her head. He isn't certain that's the message she gave him, but that was his impression. The CT scan she had this AM will tell them more about the size of the leak.
Zoe is more alert today--yesterday she was very lethargic due to the regular doses of percoset she required for her pain. Today she's smiling and doing a little more of the vocalizations we are used to.
Jeff and I are stretched, but getting unfortunately used to it. The strange bright spot I think of whenever we are told that we will have to spend yet another night here is that I will get to have another serving of bacon in the morning. The food here is terrible, but we have gotten into a pretty good breakfast groove here. And, the bacon is AMAZING. I think I've had over forty slices since I've been here. The funny thing is, I am not historically a bacon fan. But, this experience is stretching us in many ways...
4 comments:
argh...sorry to hear of this latest development. fingers crossed for better news coming your way soon. have a BLT for lunch, maybe?
Hello, I'm Mary's cousin and she passed on information about Zoe. About 3 months ago, my nephew fell into a swimming pool and he spent a moth in Children's and made a miraculous recovery. He is walking, talking, doing everything a 2 yr suppose to do. You have the best team of doctors at Children's. Keep your chins high.......Elissa Dean
I am going through withdrawal not seeing you guys, but we think of you every single day and are praying and cheering for precious Zoe. The silver Zoe talisman Dave wears keeps falling off, but he always finds it somewhere closeby. We think when he can't, that's when you'll all be home, safe and warm, and she won't need it anymore. Kinda kooky, but that's how we roll in this family, huh? We love you all so, so much and can't wait to give you warm, long hugs. Hope to see you at Thanksgiving. Skylar will be home. Yay! Kiss our girl. M&D
Hey Kel & Jeff, I've been catching up here and sending my best thoughts, vibes and wishes. Hope you get home soon...and make sure you find out the bacon brand! Good bacon is hard to come by...I know what I'm getting kel for Christmas :) All my love ~ Gary
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