Zoe's last dose of chemo is almost totally infused. She's sleeping in bed in front of me, still tolerating her chemo amazingly well.
Today's little excitement happened when I picked her up for one of her twice daily weigh-in's. Somehow her line that was infusing the ATG came undone and popped off. Some of the chemical splattered, and I got to experience just how caustic it is. That stuff burns! I got a couple drops on my face and neck--Zoe got some on her skin. We both received welts from the contact.
The tubing was replaced, and she was quickly hooked up again. No harm was really done, but it was startling to feel just how nasty that stuff was. I am truly amazed she's tolerating it so well. Of course, her experience is also a testament to the science of the regimen she's undergoing.
We were visited by musicians today. They played the sweet song of "Dream a Little Dream," and Zoe was rapt with attention. Come to find out this was their last day here. The funding for the program they were a part of, the "Big Apple Circus", has been cut. For eleven years children here at the hospital have been visited and entertained by members of the Big Apple Circus, but there's no longer any money for it. Another economic casualty.
I have to try to remember not to wait this late to post--my brain doesn't work as well as I would like it to! But really, that's been the case most any time of the day these days ;-).
2 comments:
Hey Zen Folks
Today is a day filled with hope. The nation rises to a new dawn and a sense that things will change for the better. I am letting some of this optimism (an ongoing prayer really) wash over my hopes for you and your beautiful child. See you with the meatloaf tomorrow. Love to all of you. Ms.Karelle
I didn't get any of that benevolent toxic waste on me, but I remember the stern warnings about never touching it, never touching his soiled diaper, etc. Amazing.
We didn't have any music at the hospital wayyyy back in the old days when Clinton was still young (lol) but we had this very cool offer from a charity. They gave us a questionaire with lots of questions about Ray. We filled it out, sent it in, and they sent back a song all about Ray. The neatest thing was that Eric's a huge jazz lover, so he made a special request that it be jazzy. It turned out great, and the note back said the song writer loved writing it as a change from the lullabye-ish songs he was used to writing. "Little Ray Olsen you're a real cool cat -- you're a swingin' little child, there's no doubt about that...." LOL I need to dig that out.
If you are interested, check out http://www.songsoflove.org/ I think this is the same outfit, although they were just getting started way back then.
Our doctor used to love that we had jazz playing all the time...he actually went to the Bahai church that Dizzy Gillespie went to on the East coast. He would joke that he wanted us to pipe it into some of the other rooms to liven things up a bit. Music is good! :)
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