Day -3

Zoe keeps on trucking; other than our locale, the tubes coming out of her, and the fact that she's been smelling faintly of chemicals, one wouldn't really know that she's not just having her usual, normal existence.

There are cracks that reveal some of the intensity for her--today one of her doses of Benadryl was 30 minutes late (doses come every four hours now), and it showed. She was fussy, agitated and not easily comforted. Dosed up, food in, and she was a happy girl again.

Another day of glorious sun, and this time our gracious nurse shooed both Jeff and I off for a walk together. We explored the surrounding neighborhood and got some great vistas of Lake Washington. Money may not buy you love, but it will certainly buy you a gorgeous house in the Laurelhurst neighborhood!

Jeff was fine with me going home early tonight--and I've found myself rattling around aimlessly in my house. Too distracted to do something productive, too cooked by an overdosing of TV and internet to feel alright zoning out some more. Guess I'll go take a hot shower and try to go to sleep early.

Tonight Zoe has been getting a blood transfusion as her hematocrit levels are slightly down. Her fluid balance in and out is doing pretty well, she's not had any reactions to the ATG and Cytoxan so far. It's easy to find myself thinking that not much of anything is really happening to her because she doesn't really manifest many outward signs of the process--yet.

The aunt of the British baby with osteopetrosis I mentioned before just reminded me that after the actual transfusion of the transplant she will really start to feel bad. Buckle up, Mama.