Zoe's been on the Busulfan for a day and a half now. She's mostly herself, but a bit crankier and less energetic.
Jeff stayed with her last night. They were more proactive in helping her sleep as it appeared that she was heading for the same wakefulness issue as the prior evening. With the help of Benadryl, she slept from 11pm to 4am, and after a bottle, fell back asleep until just after 7am.
Jeff and I trade off with baby duty while she's awake. We try to get a little time for ourselves away from the room. There is a therapy pool with open swim hours, so both Jeff and I have had an opportunity to take turns and go get a little exercise.
Both Zoe and Jeff have been napping for the last hour and a half. The doctor stuck her head in to tell me that they are pleased with Zoe's blood chemo levels, so they won't do much altering for now.
I asked her to remind me when patients start to really feel bad, and she said that most patients don't feel really awful until a couple days after the transplant infusion takes place. The actual days of the conditioning are characterized by some queasiness and fatigue, but in general are not usually terrible for the patient.
The mythical bacon here has lost a bit of its lustre for me. It's still as good as I remember it, but I think my body craves it less now that I'm not breastfeeding any more. Ah well, breakfast at Seattle Children's is now just another meal--and no longer the highlight to look forward to.
Perhaps I can ferret out another culinary love-affair to be had here, but somehow, I doubt it.
4 comments:
Thank you for keeping us informed, Kellie. I really appreciate it. I check several times a day to see how you three are doing. Much love, stephanie
Kellie,
Hang in there and know how much I love you. Much love and prayers to Zoe, Jeff, and you.
Kathleen
Hey there - let me know if you want a time-out glass of wine today or later this week! I'll be there with the limo in a flash.
Pool? Gym? Nice! Gives new meaning to the word "Club Med". (haha.)
I remember Benadryl as "baby knock-out drops". It may sound crass to the unintiated, but we learned to love them and the relief they gave Ray (not to mention his mom, dad, and nurses!) :)
Oh, and one more thing -- how the heck did I survive in that little room without a laptop and the Internet? Man, it was the dark ages 12 years ago. :)
You are doing good....*hugs* :)
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