Day +23

Jeff here,

I just sent Kellie home to get some much needed rest tonight. I will try to fill her shoes.

Overall today was a good day in a post BMT day 23 kind of way. It is amazing how you get use to things and how quickly they become "normal".

We are still concerned about her fluid levels. Zoe's belly is getting bigger and it becomes a balancing game between fluids in and fluids out and what her different body systems are doing.

They are watching her very closely. Actually that's what they do all the time.

I am watching Zoe play with some toys that are hanging from a strap velcroed between the bars of the crib. The tambourine jingles as she hits it with her hands and she laughs in response to the new sounds.

She is very talkative and playful at this moment.

Keys words: at this moment. That's all I have. Who knows what kind of ride we will have tonight.

Plateletes stayed above 10 this morning. That meant we could wait till this afternoon to get the matched donor plateletes and not have to go with the pooled platelets. They can cause more reactions than we want.

Just got the word from our nurse that her platelet count was at 5 after this afternoon's matched transfusion.

#$%@#!!!!

It shows us that just because it's matched doesn't mean we will get the bump we want. Onward we go. I hope we can get more of the donor's platelets we had yesterday. I am thankful that there are even people willing to give, and I want to suck the ones that work dry!!

This is definitely testing my resolve. I was hoping that the low platelet phase had passed, but...

Here's to a "normal" night.