Zoe's great--and they've put us back on isolation as her nose is runny.
Not a huge deal. Isolation means that we can't hang out in the public places on the unit, we can't put leftovers in the fridge, and that everyone who comes into our room has to gown and glove up and wear a mask. They reinstated isolation until the results of today's nasal wash comes back tomorrow morning. They don't want to risk her having a bug that other compromised kids could catch.
At least we know they're fastidious.
We'll see tomorrow, but Jeff and I are guessing the runny nose is in reaction to the formula they started her on yesterday through her NG tube. Just 8 ml an hour, but it's enough to get her gut used to food again. As we've never really given her cow milk based food, we're thinking it might be a reaction to the dairy.
I am really starting to think that Zoe is reaching a level of vitality she didn't even have prior to this current hospital stay. It's as though the new bone marrow is infusing her with energy she had previously lacked. I can't wait to see what she's like when her numbers are fully back to normal!
I've had to shake my head at myself today. Today's nurse was new to us: a young gal too eager to please and altogether too quick to apologize for any little thing that didn't merit an apology. It just irritated me. The more she apologized, the more irritated and curt I became--which in turn caused her to apologize more.
Poor girl. While it's great working with kids, I'm sure it's the over-stretched parents the staff here could probably do without sometimes.
Hey, I try, but some days...
1 comment:
Such great news re: the engraftment! Reading your blog has the roller coaster effect of a good novel. Only the reality of this drama is too close to home.
Somehow I think your "attitude" with the nurses/attendants is just a way to remain real with your own beautiful, strong, no bullshit self. Stay that way. Love and more meatloaf (or anything else you desire), Ms.Karelle
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