Dr. Manley showed up and was all smiles and admiration for how well Zoe is doing compared to the last time he saw her. Tomorrow they will start to wean her off the prednisone and see whether the GVH rash for which it was prescribed will stay away.
Today our favorite nurse shooed Jeff and I away for a couple hours outside the hospital. For the first time in six weeks (well, much longer than that if we include the weeks leading up to admission)--a date! We drove to a cafe where Jeff's nephew has a photo art show hung (fabulous work, Isaac!). Friends who live a couple blocks away came and ate with us--it was so great to experience some carefree normalcy. And, Zoe was lovely and charming for the nurse while we were gone.
Zoe continues to get more and more active, expressive and opinionated. I'm amazed at how fast her strength is returning--I'm thinking she might just learn how to sit up on her own by the time we leave here. Small accomplishment for a 13.5 month old, but a HUGE leap in ability for this little girl!
Manley said that next on the agenda for Zoe is the process of transitioning her out of here. It will take awhile, but it's the first time the words have been said. Yay!
Of course, it ain't over 'til it's over, but I'll take it.
3 comments:
So good to hear!!! More Amor to you all.
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This news has made my day! Glad to hear you two had a nice date too -- sounds like a very wise nurse. :)
Oh man...I have chills. I sooooo know how you feel to hear those words. Btw, our hospital stay was 44 days...you still have 12 to go...there's even a smidge of hope you could beat our record! What the heck...I'm rooting for that! (and I'm still crossing fingers, Mr. Fate, so don't mess with me.. ;) )
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